tag:blogger.com,1999:blog-2318756985870843725.post4739309885043021772..comments2024-03-21T03:36:00.644-04:00Comments on Caroline's Breast Cancer Blog: Ethical dilemma on a cancer drugCarolinehttp://www.blogger.com/profile/14607559482363983911noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2318756985870843725.post-61964967498897960682013-10-01T18:31:40.553-04:002013-10-01T18:31:40.553-04:00P.S. CNN made an error in saying Andrea had hired ...P.S. CNN made an error in saying Andrea had hired a PR firm. They need to made a a public retraction.ksloanhttps://www.blogger.com/profile/12895821765073262267noreply@blogger.comtag:blogger.com,1999:blog-2318756985870843725.post-5933304253442615652013-10-01T18:30:44.454-04:002013-10-01T18:30:44.454-04:00Caroline,
This is Andrea's mother. Let me ASSU...Caroline,<br />This is Andrea's mother. Let me ASSURE you that Andrea has not hired a PR firm. She has not hired anyone. We are not wealthy people. Andrea works for a nonprofit organization; she by no means makes a corporate lawyer's salary. She is a 45-year-old woman with BRCA positive cancer who wants to survive so she can see her niece and nephews graduate from high school, so she can continue her work as a domestic violence advocate, and--yes--so she can have fun. For seven years she has made the best of a horrible situation (5 bouts with ovarian cancer) & has come out calling her life "rockstar." That's a relative term. It bespeaks her basic personality and her zest for life. <br />From July 19th until the middle of August, she tried everything imaginable to get BioMarin to engage in dialogue with her about compassionate use of BMN 673--only after her oncologists recommended that she approach them AND the FDA had looked at her information and said she was an "excellent candidate for compassionate use" providing the company would request it. We understand that corporations are not required to grant compassionate use of their preapproved drugs. There are any number of reasons it made sense for Andrea to request BMN 673, not the least of which was the company's own hype about their PARP inhibitor. If you would like to engage in private conversation with me, I would appreciate discussing Andrea as a human being and a fellow cancer sufferer--not as a self-made media queen. My email is karenssloan@gmail.com Thank you so much for reading my comment. I sincerely wish you all the best.ksloanhttps://www.blogger.com/profile/12895821765073262267noreply@blogger.com