Sunday, February 14, 2010

Other people's problems

As previously stated, I try not to allow other people's problems to get in the way of my life. I have enough going on in my life that I don't have the time or energy to deal with other's problems. Usually.

Yesterday I went for a walk with a friend and another woman came up to us. She was clearly upset. She said she couldn't tell us much because she didn't want to get us involved but someone had hit her and she wanted us to take pictures of her black and blue eye with her camera. She had tried to take pictures of it herself at home and outside but they didn't come out. We took her pictures and wished her well and suggested she go to the police. We ran into her again in our walk and she seemed a little more sure of herself and thanked us again.

While walking my friend and I were talking and said that while neither of us our perfect and our husbands are not either, we are glad that we are not dealing with any kind of domestic violence such as this woman was.

My problems just seem to be continuing and unescapable. Once you develop chronic health problems, they don't just go away. You can't leave them behind. They continue to grow and snowball. One thing may cause another. You end up taking medications for the side effects of your medication. That is why I stick with dealing my own problems. And I wish the other woman well and hope she can get out of her bad situation before it grows and snowballs.

I don't wish to equivocate domestic violence with cancer or other health problems. Cancer is a lifetime health concern. Domestic violence, while seemingly curable, can be very difficult to remove from one's life. It can lead to stalking and other behaviors. It leaves deep emotional scars and trust issues. Neither one is something to wish upon anyone. And neither one is ever really going to go away. It would be nice if they did, but I don't expect them to.

Saturday, February 13, 2010

Donations and fundraising

A friend of mine is going to do the Avon 2 Day Walk for Breast Cancer this year. A fact that I find very admirable because this is something I can no longer do. A few other friends regularly do the Pan Mass Challenge. I know others who do the Komen 3-Day Walk as well. I volunteer for the American Cancer Society Relay For Life locally and have helped fundraise for other organizations. Also, I donate if asked by friends if I think it is a worthy cause in an amount I can afford.

Some of these events have relatively high minimum required donations and others do not. Why a minimum required donation? Well, let's just say there are fund raising events and some people need to be 'prodded' to make an effort to fund raise. I know of one event where people would sign up and then write a $20 check so they they have donated something.

However some of the minimums seem outrageously high. $4200 minimum for the Pan Mass Challenge, $1800 for the Avon walk and $2300 for the Komen walk. And participants have to supply a credit card to make up the difference between their fund raising efforts and the minimums as well as to pay for a registration fee.

In thinking about it, if you are the organizer of an event where the goal is to raise money, you need to expect a certain amount of return on your efforts. Events that are community events to build awareness, such as a local cancer walk, there may be less emphasis on fundraising.

Participants, who desire to help a worthy cause and are donating their time and efforts in fundraising and getting physically fit, should be appreciated for what they are doing. Donate to the ones you can. Or help them fundraise if you can't donate. Or help organize or volunteer at events.

Friday, February 12, 2010

But I'm still confused

Last night I was surfing online and came across a great resource - decoding your blood counts. I was so excited. This explains what the list they send me after blood tests mean. I looked around and pointed it out to my husband who agreed that he didn't really understand a lot of it either. In my rush to be enlightened, I pulled out my latest blood test and compared. I don't feel enlightened. In fact, I still feel confused.

Truth be told, now I understand better what the individual numbers mean but I don't really understand the big picture. What do my blood counts mean? Now, most are in the normal range which I can deal with but then there are the ones where normal is greater or less than something. Well, what does it mean if you are a lot more or less as opposed to only a little more or less? Then I read the disclaimer at the top of the page: "Interpretation of the results is strictly the province of a medical professional." Okay, so I guess I go back to being a patient patient and ask questions at my doctor's visits.

This morning I am up extremely early because I was so smart and scheduled a neck ultrasound for 730 this morning. A neck ultrasound is the new protocol for following up thyroid cancer. Apparently they can tell about some recurrences through blood tests but they also need ultrasounds for others. When I say new, it means that 20 years ago, they weren't doing ultrasounds as frequently. I don't believe I have ever had one before but there is a possibility I did back in 1981 before surgery. I can't remember. This counts as my first one essentially. I don't really know what to expect. I have asked some friends with thyroid cancer who have been through them and they all say its no big deal so I am not really concerned. The odds for thyroid cancer recurrence after so many years are small but it is still possible. Cancer is the gift that keeps on giving and there are cases of thyroid cancer recurring more than 40-45 years later and now these are part of the standard protocol for follow up - every five years. My real question is: what if it tickles? I'll just have to suck it up and deal.

Thursday, February 11, 2010

That other topic - death

Senator Murtha died recently from complications from gall bladder surgery - this apparently was a rare complication, less than 1 in 1,000 die as a result of gall bladder surgery. Its a relatively safe surgery. Wait, 1 in 1,000 - I don't think I like those odds when it comes to a medical procedure on my body. I will say I had this done in September 2008 and I'm still here. But still. I like to think surgery is safe and its meant to make you better and will keep you from dying. That's the whole point.

So I decided to do a little research. I found one source from 2002 which puts the lifetime odds of dying from medical or surgical care as one in 1,260. I did a little more research - hmmm I'm not sure I like this - the life time odds of dying of cancer are 1 in 7... I don't want to think about that one. But I think I prefer the odds of dying from asteroid impact as they are either 1 in 200,000 or 1 in 500,000 (apparently they aren't sure).

Finally I see some numbers that I like by looking at the Death Risk Calculator from Carnegie Mellon. It clearly delineates that I am not likely to drop dead anytime soon. I think the key word there is 'likely'. I don't know if there is a calculator out there that lets you put in your medical history and then find out your odds of dying. That's because nobody knows.

At one point I worked for a man who was a bit of a cynic (my personal opinion - but a very nice guy) who insisted on all employees being cross trained because of the 'hit by a bus syndrome'. If there is only one person who knows how to do something and they get hit by a bus one night, then what do you do? At first, I thought this was a bit pessimistic but if you think about it, no one knows when they will die. We all hope for a long and happy life full of good health, adventures, fun, friends and more. But we are hoping. We don't know. If you look at life expectancy numbers - that's only a guess. That's sort of an estimate - think of it as the same as the guy at the carnival who will guess your weight - just an arbitrary number.

So we are all going to die some day. But sometimes its these little medical bloopers (like cancer) that make us stare it in the face a bit more closely than we were previously. Part of getting on with our lives is learning to deal with that concept.

Wednesday, February 10, 2010

Eating

We do know the principle for computers 'garbage in, garbage out'. But it also applies to people. If you eat bad food, you are not treating your body like the temple it should be. And you will pay the price. I was brought up eating right. I usually try to eat right. I skip the junk food but sometimes succumb to popcorn based snacks - Smartfood or Cracker Jack (still has prizes but they are pretty lame these days compared to what I got as a child - temporary tattoos and stickers are nowhere near as cool as a little car or doll). Lots of fruit and vegetables. Sometimes I even spring for organic. I smuggle vegetables into my husband's diet regularly to the point that he accuses me of being unable to make something unhealthy. He tells me I always make whole wheat, vegetables, and nothing decadent. I even exercise five days a week. (I'm not saying that just because I do all this you should to and you will be healthy - I mean look at my medical history just to negate the whole point I am trying to make.)

There are countless books out on how to eat healthy and live a healthy life. But really the point is, society can't afford to keep patching up the damage people do to their bodies by eating badly. But the point is we all need to try to eat right and exercise. Mrs. Obama wouldn't need to target the issue of childhood obesity if this wasn't a problem. So eat your veggies and get moving.

I'm done orating for the day. I am very tired. My back doesn't like me. I have had a lot of pain for the last few days and didn't sleep well. This may lead to an appearance of my inner b*tch. But since we are getting a big snow storm today, I am going to work this morning and then will go to the gym and take a nap - the most productive thing to do when the choice is being crabby.

Tuesday, February 9, 2010

Difficult patients - surely they aren't talking about me

Now, I know I am perfect and could never be annoying! Ha! We are all guilty of this from time to time. I know I was a cranky b*tch at a recent doctor visit, when I attempted to eat lunch after my appointment. I do feel guilt about this as well. There is no reason to be cranky (hence one of the reasons I should try to destress my life) but we all know even the calmest person can lose it once in a while. This is because we are normal human beings (I know, there is no such thing as normal but bear with me here).

Yesterday I read this article that is titled 'When Doctors Find Patients Difficult' (I am constantly amazed by the number of medical studies going on out there). Then I thought, 'surely they aren't talking about me!'. They do accurately point out that there are two sides to every discussion. On the patient's side, you go to the doctor for lots of reasons: a check up, because you are not feeling well, for a follow up to a surgery/procedure/test, etc. If your reason is stressful (which can be any of the above), you may be a bit tense and short tempered understandably. Your doctor attempts to be patient and reasonable and have a normal discussion. After the appointment, they go on to the next appointment where they go through the same thing again and again. Is this stressful? I think so.

So what if the doctor isn't having a good day? They are human beings as well - they could have a sleepless night, fight with spouse, a flat tire, whatever. Add to that numerous patients in a row that are cranky, and you get burn out, high blood pressure, crankiness and all sorts of normal human reactions over time.

In reading the article, one of their pet peeves is patients who ask to be prescribed an unnecessary medication. Who is the doctor here? Just because your friend takes something or you saw it advertised on TV, doesn't mean its right for you. Let the doctor make the decisions. I see no problem asking if there is something else they can give you that might help your situation but to demand a specific medication? No.

The article also discusses the fact that older doctors are better at handling the stress and burn out. Is handling a difficult patient an acquired skill? Possibly but that doesn't mean we should take advantage of or take out our frustrations on our younger doctors.

So let's all be nice together and let the doctors be doctors and the patients be patients and attempt to work out things without causing stress on either side.

Monday, February 8, 2010

I really am working on this stress reduction thing

Yesterday was the first day of my planned stress reduction life style. I did some cooking in the late morning and then went for a walk. I spent the afternoon on the couch watching TV and went to bed early because I was tired. I remembered to take all my pills and found a balance board that I can use to strengthen my ankle that I am going to pick up today.

Okay, now here's the real story. I did some cooking because I had vegetables (sweet potatoes and butternut squash) that were about to go bad so I cooked them up and threw them in the freezer to be used over the next few weeks. I also roasted some red peppers for pizza topping and another batch of hummus that I'll make this morning.

Then my day went down hill. I conned Walter into going for a little walk with me. He turned back after a little bit and I continued with the intention of walking through the nearby conservation land as I haven't been back there for a few weeks. Well, there was some ice. And some melting. Meaning water on the ice. So there was a little slip and fall. Again. I'm fine. But I did spend the afternoon lying on the couch with an ice pack on my ankle and I took a pain pill. And I took a second one before bed.

I am relaxed this morning because of the pills which resulted in a good night's sleep. I also don't seem to have too many fall related aches and pains. But I promise not to walk on ice today. Yesterday my husband said to me 'promise me you won't fall today'. I'll try to stick with that one today.

I Started a New Blog

I started this blog when I was diagnosed with breast cancer in 2007. Blogging really helped me cope with my cancer and its treatment. Howe...