The FDA has actually started listening to the voices of patients. Yes they have actually attempted to reach the 20th Century (not quite ready for prime time or the 21st C but we can call it progress).
I was pleasantly surprised to read this article on how the FDA has actually reconsidered decisions to pull drugs off the market as a result of patients and caregivers lending their voices. So you can do it too. Don't be afraid to write to a pharma company and the FDA if you disagree with a decision. The one note of caution is that often drugs are pulled due to side effects. So you may benefit from the treatment but beware the potentially nasty side effects.
Me, I think hyou can tell I never fail to speak my mind!
In addition, the article contained this incredibly helpful schematic FDA's approval process.