Unfortunately because of my health I have learned a lot about dealing with doctors and ailments. Its the one thing I can still do.
Someone I know has been dealing with a significant medical issue and now has gotten some more news which could impact the rest of his life permanently. As someone who has dealt with multiple medical issues I could relate to his concerns.
I shared what I would have done based on my experiences with ailments. I guess I have learned a lot in the past ten years or so of medical disasters. This is what I have learned:
Step one: education. Find out as much as you can about the body part with the problem. Research the crap out of it. I would start with any medical organization for doctors who deal with this problem. Then I would find out as much as I could about the ailment. And then the body part with the problem - what does it do, how does it work, and what is the impact of a not so good body part - can you live without it or if its damaged. What is the long term impact of it. Take the time to learn all you can about the changes in your health and how your body can deal with it.
Step two: ask questions. Write down all the questions you have and then get someone to go to the doctor appointments with you so you can the answers you need. Their job is to make sure you get all the information you want. This is always a good idea with a major medical issue. Keep learning, even attempt to stay up with the latest research.
Step three: options. Once you get the information so you have a better idea of what you are facing, maybe get a second opinion. Take your time and think about options. Digest what you have learned and figure out what you want to do. Don't assume the first doctor is correct.
I hate dealing with doctors and stuff. But I guess I have learned enough that I can share with others on what has worked with me. I just wish I was healthy.