A good patient takes time to learn about any significant medical ailment so they better understand their health. If you are educated you will be less stressed and potentially handle your ailment better. You really do not want to just jump on the internet and google your ailment. That is the worst thing to do.
A good first step is to ask your doctor who diagnosed you on where you can get good information. Its their field of study so they will know where to find information. My doctor at my breast cancer diagnosis sent me to breastcancer.org, komen.org and the American Cancer Society (cancer.org). He said not to believe any information I found on line.
If you forgot to ask your doctor the question, you can start by finding where that type of medical specialty hang out on line. For example, at my rheumatoid arthritis diagnosis, I googled 'rheumatology doctor associations USA'. I ended up at the American College of Rheumatologists (ascr.us). They had a link to patient information on their front page. Then I found the American College of Rheumatology (rheumatology.org). Those two links found me lots of information that really helped me.
For any kind of cancer, I always start at the American Cancer Society (cancer.org) I do not consider any other site to provide information of any value on cancer, except for the American Cancer Institute and a few other government type sites.
Another place to start are accredited resources for general medical information. The one's I consider good are:
- WebMD - webmd.com
- Mayo Clinic - mayoclinic.org
- The website for the hospital where I go - Lahey Medical Center - lahey.org.
It always saddens me when I hear people quoting misinformation they found on line which is completely wrong or just incomplete. That does not help them at all. Take the time to learn about your health so you can be healthier and less stress.
1 comment:
Hi Caroline,
Thanks for posting about the good website to go to about cancer! Knowing where to go and where NOT to go on the internet is critical. I read your posting with interest as it dismays me that physicians rarely give information to newly diagnosed BrCA patients about breast care products like bras and breast forms and explain that their insurance covers these products...should they have insurance. If you or anyone reading this needs to have questions answered, please go to my breast cancer support website.
Stay calm and carry on!
Betty
http://pinkribbonconsulting.com/survivors/
betty@pinkribbonconsulting.com
Post a Comment