Wednesday, December 16, 2015

Please do not put a pink ribbon on anything

I am so disappointed these days. Why? Because Komen (for the cure*) has taken what could be a wonderful cause and turned it into a disaster. Back when Nancy made a promise to her sister and turned it into a cause, it was a great idea. But now, not so much.

Their website states: "In 1980, Nancy G. Brinker promised her dying sister, Susan, that she would do everything in her power to end breast cancer forever."

The idea to raise awareness of a deadly disease that was only whispered before the organization came alone is a wonderful one. They could have done so much with this. But they really missed the mark. They are not working to end breast cancer forever. They are raising awareness. So much for that promise.

As the vast majority of literate people are aware of breast cancer and the benefits of early detection, they could easily have moved on to shifted their cause to promoting research. The majority of their funds goes to education and training. But does not go to research, particularly for metastatic breast cancer research, where funds are clearly needed.

In fact if you read their website (scroll down on the front page), you can see they clearly use 20% of the funds they raise for fundraising and administration and only 80% for their mission.

To be clear I have never intentionally given money to the Komen (for the cure*) foundation. I did volunteer for them for a while. I helped at local events back when I was naive about their policies. They were very disorganized on the local level. Their volunteer coordinator did not coordinate well and everything was 'last minute'. This is a problem with many organizations so I am not saying Komen is the only one who does this. But there was no follow up with their events and we never felt appreciated.

I also used to participate in their message boards for breast cancer patients (I will not use the S-word) when I was going through treatment. They used restricted the use of their message boards and many of us felt disenchanted and left their message boards. Most of us are still happily connected on Facebook. That is a real shame as there is a lot of good information for those diagnosed with breast cancer on their website. Or there was. I'm not sure its still there as I don't bother with their website.

By ignoring the needs of the metastatic breast cancer community, they have lost many supporters. Susan Komen died of metastatic breast cancer. Women who are dying of breast cancer are calling for boycotts of the organization. See Laurie Becklunds request, "As I Lay Dying"  and Eileen over at "Woman in a Hat" as she writes about Beth's adventures at the San Antonio Breast Cancer Symposium and the idiot from the Komen board.

And I haven't even gotten into the Planned Parenthood disaster.

Komen (for the cure*) started by taking a nice woman's peach colored ribbon and turned it into a pink ribbon and has plastered it on everything they can. Now we have too many pink ribbons covering up a major gap in funding. Please stop the pink.

* As part of their ridiculousness, the Komen foundation (for the cure*) loves to sue smaller organizations who use the words For The Cure in their name. Claiming its an infringement on their copyright.

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