This will take some thought

The other day I had a really bad idea and got on the scale. We will just say it didn't make me feel happy. In fact, I was rather upset. I have no idea why the scale went so much in the wrong direction. We will just say it incentivized me to take a look at my eating habits and figure out some strategies.

So I really need to lose weight. I get it. I'm working on it. Or so I thought.

And then I read this article: Weight Loss Predicts Mortality in Rheumatoid Arthritis: Weight loss is a strong predictor of mortality in patients with rheumatoid arthritis, according to a study published online June 26 in Arthritis & Rheumatology.

Or basically the more you lose weight when you have arthritis, the more you increase your risk of mortality with RA. That isn't really helpful news for me at all. My inner size 8 is calling me. I'll have to think about this one for a while.

I am sure any doctor will tell me that I should lose weight for a variety of reasons. All doctors are skinny these days. Skinny people are healthier (usually). I am not a healthy person and now this is telling me I shouldn't lose weight because it will increase my mortality chances. Great.

This isn't really good news. Or maybe I really need to stop reading the latest medical news. 

Keeping your sense of humor through it all

One of the key traits to help cope with your ailments is keeping your sense of humor through it all. If you lose your sense of humor, it will become so much harder.

I was reminded of this by this comedian who was treated at Dana Farber and then had a special show for his caregivers at the hospital.
I constantly crack jokes with the medical personnel I deal with. I have to. Otherwise, it would be too depressing. If I cannot see the humor in the number of punctures I get from regular blood tests, I might start oozing blood out all the needle holes.

• I need a frequent parker discount at the hospital's parking lot.
• All the johnnies are designed by Dr. Seymour Buttz. (Sound it out and you will get it.)
• Personally I wished they had ramps at hospitals so I could go on wheelchair rides like Curious George did.

Okay, my sense of humor is not fully developed this morning. Its Monday morning. I have chemo brain and fibro fog.

But I hope you get my point. Never lose your sense of humor. Life would be boring with out it. And cancer would suck even more.

A long sad day

Yesterday I drove my parents to the memorial service for a neighbor from my childhood. It was a 330 mile round trip. By the time I got home it was nearly 9pm and 12 hours from when I left the house. I don't travel so well these days so I made a point of getting a lot of sleep last night.

Susan died last fall from breast cancer, six weeks after her diagnosis. She had ignored pain in her ribs last spring because she thought she had strained something. She was a farmer and very active. Also her tumor was so far back and so close to  her ribs, it may not have shown up on a mammogram. It wasn't until she started feeling many more symptoms did she end up in the emergency room and got some very bad news.

Her mother was also diagnosed with early stage breast cancer in early 2014. So in speaking with her two remaining sisters, I made a point of telling them both they should consider themselves high risk for breast cancer. They agreed and said they had already spoken to their doctors about it.

It was a nice memorial service and internment of her ashes followed by a family gathering at their house on the ocean. I got to catch up with both her sisters, mother, and another friend from 4-H back in the 1960s.

I also met a woman who has the same rheumatologist as me. Her rheumatoid was more advanced than mine and she has had six joints replaced - both ankles, knee, and hips. I can't remember them all. She has refused to go on to a biologic and has been on methotrexate for 14 years. She was in a wheelchair because of her recent surgeries. I never want to be in a wheel chair. Another sad reminder of the implications of my ailments.

Between a memorial service, a long drive, and seeing the implications of rheumatoid. It had an emotional as well as a physical toll. I need a day off today but have too much to do.

Okay, so what am I supposed to do?

The FDA issued a warning the other day about NSAIDs. They strengthened their earlier warnings on NSAIDs saying they can increase the risk of heart attacks or strokes. I've been on a prescription NSAID for about 4 years. Should I be concerned?

The official warning from the FDA says:

"Patients taking NSAIDs should seek medical attention immediately if they experience symptoms such as chest pain, shortness of breath or trouble breathing, weakness in one part or side of their body, or slurred speech."

 But I think anyone, whether they take NSAIDs or not, should seek medical attention if they experience those symptoms. Not helpful. Thanks.

The reason I am on NSAIDs for so long is my back. I take them for their anti-inflammatory properties to help with inflammation around my disobedient (pain causing) disks in my spine. I probably have inflammation in other areas as well.

I am not due to go back to my back pain doctor until September. But I will make a little note to ask about them. I am all for getting off any prescription I can. But in the meantime, I'll be on the look out for those symptoms....

Dr Google, Dr Oz, and other bad resources

I often tell people to step away from Dr Google. But sometimes he sucks you in and you can't help it. Then there is Dr Oz who will be happy to get you to buy green coffee beans or something that someone supposedly believes will cure cancer. Well maybe Dr Oz isn't that bad but I think he's smarmy (definition: excessively or unctuously flattering, ingratiating, servile, etc.)

Finally we have those online symptom checkers to help us figure out what's wrong with us instead of going to the doctor. But they are usually wrong as well.  I admit to using online symptom checkers to see if I can figure out what is wrong with me. But since I have so many other things wrong with me, I usually ignore them too.

Now new research shows how bad the symptom checkers can be. There are many good health websites, such as WebMD, maybe even your hospital. But the symptom checkers where they try to diagnose what you have when you select your symptoms, they are not so good. They aren't so great at figuring out what is wrong with you. And they don't always send you to the doctor when you should go and sometimes send you to the doctor unnecessarily. Use your common sense instead. Or if you aren't sure on your common sense, phone a friend.

In the know

If you are perpetually sick/ill, you are in the know on how we feel. Someone came up with a list of 20 items but a few stuck out for me.

• You aren't quite sure what it means to feel "100%" because you're usually hovering at a solid 80% on a good day.
• Sometimes doing even the simplest of tasks feels like a five hour workout. Can I nap yet?
• By some miracle if you are actually not sick, you usually overexert yourself so much that you'll be sick again in a matter of days.
• Your immune system feels like its one weekend away from collapsing completely.
• Naps become more important part of your day.
• "You don't look sick to me". No, but my kidneys feel like they're failing so there's that.
• When you finally feel healthy again, it's an emotional experience for you. 

I'm not sure I'll ever hit that last one again but occasionally I can sit still and feel no aches, pains, or anything else for about 30 seconds.... Until I move and then it all starts up again.

And no, if you  haven't walked the walk, you can't tell me how I feel.

Who is with me on this?

I was totally disgusted but also happy when I read this article about this moron oncologist, Farid Fata, who told over 500 patients they had cancer and treated them unnecessarily. Or even if they had cancer, they continued to receive chemo long after they were in remission. The result? Hundreds of people with lasting health issues and even some deaths. Then I found this article with more background.

He also over billed Medicare and insurance companies for millions of dollars as patients received over 9,000 injections or infusions. Some received unnecessary chemo for over five years.

The only thing more despicable than people who claim they have cancer and don't to raise money for themselves, are doctors who mistreat patients like this.
I just want to get in line with all these other patients and smack him in the face for his lack of morals and crimes.Who is with me on this?